Study Highlights Feelings of Dismissal and Misunderstanding Among Women with PCOS

A recent study conducted by researchers at the University of Colorado Anschutz Medical Campus reveals that many individuals living with Polycystic Ovary Syndrome (PCOS) experience significant feelings of being dismissed and misunderstood by healthcare providers. Published in F&S Reports, the study emphasizes that women with PCOS, affecting up to 1 in 10 individuals with ovaries, frequently face delays in diagnosis and inadequate care.

The condition manifests through a variety of symptoms including irregular menstrual cycles, acne, excess facial hair, weight gain, and fertility challenges. Beyond these physical symptoms, PCOS is linked to severe long-term health risks such as diabetes, cardiovascular issues, and mental health struggles. Dr. Kathryn McKenney, co-director of the PCOS Multi-Disciplinary Program, stresses the importance of recognizing the broad spectrum of symptoms, which are often overlooked.

The study involved virtual focus groups with 24 participants who shared their experiences. Many recounted how their initial concerns about symptoms like missed periods, acne, or hair loss were minimized or ignored, often during their adolescence. This led to prolonged frustration, feelings of isolation, and self-blame, as diagnoses were delayed for years. Participants noted that healthcare providers often prioritized weight management and future fertility over addressing their immediate emotional and daily symptom management needs.

Some women reported that their doctors focused predominantly on fertility prospects and weight loss, while their primary concerns involved managing emotional distress, anxiety, and persistent skin issues. Due to the lack of clear guidance from healthcare providers, many turned to social media and online resources for information, sometimes advocating for their own care by researching symptoms and requesting specific tests.

This self-advocacy, while empowering, also escalates the risk of encountering misinformation, which can further complicate accurate diagnosis and treatment. According to Dr. Phoutdavone 'Noy' Phimphasone-Brady, this approach creates additional stress and highlights the need for healthcare systems to adopt a more empathetic, comprehensive strategy that genuinely listens to and validates patient experiences.

The researchers urge a shift toward inclusive, patient-centered care models that address the full range of physical and emotional symptoms associated with PCOS. Proper education, early diagnosis, and personalized treatment plans are essential to improving outcomes and quality of life for those affected.

Source: https://medicalxpress.com/news/2025-07-polycystic-ovary-syndrome-patients-dismissed.html