New Study Highlights Challenges in Accessing NDIS Support for Autistic Youth Transitioning Out of School

A recent study conducted by Western Sydney University and funded in partnership with the not-for-profit disability organization Northcott has revealed significant obstacles faced by autistic young people when attempting to access support through the National Disability Insurance Scheme (NDIS) upon leaving school. Published in the journal Health & Social Care in the Community, this research is the first to explore in-depth the experiences of autistic school leavers, their families, educators, and service providers regarding Tier 3 NDIS support—which offers specialized assistance for individuals with more complex needs.

The study involved comprehensive interviews with 39 participants, totaling over 40 hours of qualitative data collection. Analysis of this data uncovered two primary themes: firstly, the ongoing struggle of 'fighting' the NDIS process, which is often perceived as inconsistent, unfair, and emotionally draining; secondly, the persistent concern about a future without stable funding, with many viewing the NDIS as essential for their support in employment, education, and independent living.

Lead researcher Dr. Caroline Mills emphasized that transitioning from adolescence to adulthood is inherently complex, especially for those with disabilities. With autistic individuals now representing the largest group of NDIS participants, ensuring they receive appropriate support is crucial for a successful and equitable transition.

Professor Danielle Tracey highlighted Worry about the heavy reliance on Tier 3 individual funding. Many autistic youth and their families feel abandoned when support is unavailable, heightening feelings of isolation and frustration. Participants described their experiences with statements like feeling they were 'head-butting a brick wall' in their efforts to secure needed services.

Some participants expressed fears about the implications of losing access to vital supports, which could severely impact their ability to work, study, or live independently. Concerns also extend to systemic issues, with some service providers suggesting that government funding priorities may intentionally limit access due to costs.

The researchers advocate for increased investment in fundamental supports during the critical period when young autistic individuals transition out of school—aiming to prevent them from being left behind. The study's findings underscore the need for reform and additional resources to facilitate smoother access to essential services for this vulnerable group.

This research underscores the importance of addressing barriers within the NDIS system to better support autistic youth in their journey to adulthood. It calls for policymakers to reconsider funding approaches and prioritize foundational supports that can make a meaningful difference in their lives.

Source: https://medicalxpress.com/news/2025-06-exposes-barriers-ndis-autistic-school.html