High Undiagnosed Rates of Autism in Middle-Aged and Older Adults in the UK Highlight Critical Gaps
A groundbreaking review from King's College London reveals that nearly 90% of autistic adults over 40 in the UK are undiagnosed, exposing critical gaps in healthcare and support for aging populations.
A comprehensive review conducted at King's College London's Institute of Psychiatry, Psychology & Neuroscience reveals that approximately 89–97% of autistic adults aged 40 and above in the UK remain undiagnosed. This significant underdiagnosis means many middle-aged and older individuals are unaware of their autism, potentially affecting their health and wellbeing. The review consolidates the current research and highlights that this population faces elevated risks of mental health issues such as anxiety, depression, and suicidal ideation, as well as physical health conditions like cardiovascular diseases, neurological disorders, and age-related ailments including Parkinson’s disease, osteoporosis, and arthritis.
Alarmingly, autistic adults tend to live, on average, six years less than their non-autistic peers, with a life expectancy of around 75 years compared to 81 years. The underdiagnosis not only hampers access to appropriate healthcare support, which is often hindered by communication and sensory sensitivities, but also leads to social isolation and poorer quality of life.
Despite increasing research interest in aging among autistic populations since 2012, only a tiny fraction (0.4%) of autism research since 1980 has focused on middle-aged and older adults. This limited focus underscores a critical knowledge gap, emphasized by the researchers, including Dr. Gavin Stewart and Professor Francesca Happé. They stress the importance of adopting a lifespan approach that promotes long-term studies, tailored healthcare, and expanded social supports.
The review points out the need for more longitudinal research to understand how aging affects autistic individuals specifically. Addressing these gaps is essential for improving health outcomes, reducing social isolation, and ensuring that aging autistic adults receive the support they need to lead healthier, more connected lives.
This study was supported by the British Academy and the National Institute for Health and Care Research (NIHR) Maudsley Biomedical Research Center. It calls for urgent action to recognize autism in older populations and to develop policies that better serve their unique needs.
Source: https://medicalxpress.com/news/2025-08-middle-aged-older-autistic-adults.html
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