Regional Disparities in Autism Assessments in the UK Resulting in Longer Waits for Children

Recent analysis from NHS England highlights significant regional disparities in autism assessment wait times across the UK, with children in the North experiencing delays up to three years longer than their counterparts in the South. The data indicates that children in Mid and South Essex are assessed within the recommended 13-week period, averaging about 54 days, aligning with NICE guidelines. Conversely, children in South Yorkshire face an average wait of approximately 1,063 days, equivalent to nearly three years.

This stark contrast underscores persistent inequalities in healthcare access and diagnostic services. A concerning statistic reveals that only 4.5% of children under 18 with autism referrals receive timely assessments within the suggested period across England. Additionally, research points to significant disparities based on ethnicity and gender: girls of Pakistani heritage are eleven times less likely to receive an autism diagnosis compared to white British boys.

Furthermore, the report notes a 22% increase in referrals for ADHD assessments from June 2024 to 2025, signaling a growing demand for mental health services among children and young people.

The report titled "Autism Assessment and Support Update: The Crisis is Worsening," commissioned by the Child of the North initiative, emphasizes the urgent need for systemic reforms. Professor Mark Mon-Williams from the University of Leeds stated that the autism assessment process was already in crisis in 2024, and current data suggest the situation is deteriorating. He advocates for evidence-based solutions and campaign efforts to address these inequalities.

The #ChildrenFirst campaign, launched at the National Opportunity Summit in Leeds, aims to foster practical measures at local levels, involving schools, healthcare providers, and policymakers. The campaign also introduced toolkits to support children’s health and well-being and promote system-wide improvements.

Leadership figures including Minister Josh MacAllister have committed support for these initiatives, recognizing the importance of building an inclusive support system responsive to children’s needs, regardless of their background or location. The extensive research underpinning these efforts involves universities across the North of England, collaborating to develop strategies that ensure every child receives timely and equitable mental health assessments and support.

This ongoing disparity not only affects diagnosis timelines but also impacts early intervention and access to necessary treatments, highlighting the critical need for urgent and targeted reforms in the UK's healthcare system for children and young people.