Philadelphia Hospital Distributes Special Backpacks to Support Children Undergoing Leukemia Treatment

In a significant move to improve the quality of life for young leukemia patients, a Philadelphia-based charity has gifted 300 uniquely designed backpacks to the Children's Hospital of Philadelphia. These backpacks are specially crafted for children receiving at-home immunotherapy, particularly those on the 28-day infusion of blinatumomab, a medication that allows children to spend less time hospitalized. Unlike standard bags, these backpacks are pediatric-sized and equipped with features such as a clear pouch, elastic straps, and clips to secure infusion pumps, ensuring safe and comfortable transport of medical equipment.

The initiative was led by the Madelyn James Pediatric Cancer Foundation and Burning Tree Designs, inspired by the story of Maddy Didio, a young leukemia patient who tragically passed away at 14 months old. Her parents, Jackie and Dan Didio, established the foundation after her death to support families facing similar challenges and to foster a better quality of treatment experience.

The backpacks include side laces for tubing access and clips to keep IV bags upright, facilitating easier mobility for children during their treatment routines. By providing these functional and child-friendly solutions, the foundation aims to promote a sense of normalcy and freedom for children undergoing treatment.

This charitable effort underscores the importance of addressing not only medical needs but also the emotional and psychological well-being of young patients. The donations will be distributed over five years, supporting families in managing their child's health more effectively while enabling children to engage in everyday activities like playing outside.

Maddy was diagnosed with leukemia at just three months old. Her family relocated from Virginia to Philadelphia to ensure she received specialized care at CHOP, where she underwent various treatments, including pioneering CAR-T therapy. Despite their efforts, her cancer developed resistance, leading to her passing. Her parents' experience inspired them to help other families by covering nonmedical expenses such as rent and transportation through their foundation.

The initiative was celebrated with volunteers from Philadelphia Insurance Companies, who helped prepare the backpacks with supplies at their Bala Cynwyd offices. The company named the project "Backpacks with Barbara" in honor of Barbara Friedes, a CHOP medical resident and family friend of the Didios, who was tragically killed last year. Susan Rheingold, a CHOP physician, emphasized that these backpacks are vital tools that allow children to manage their treatment comfortably at home and on the go, greatly enhancing their daily lives.