Addressing Gaps in Follow-Up Care for Cancer Survivors: Insights from a Northwestern Study

Despite the increasing number of cancer survivors in the United States, many continue to face long-term health challenges that are often overlooked in standard follow-up care. A recent study conducted by Northwestern Medicine highlights significant gaps in survivorship support, particularly for head-and-neck cancer patients who have undergone radiation therapy. The research, which surveyed 317 survivors between 2013 and 2023, reveals that a majority are unaware of survivorship care options and that their mental health needs remain largely unaddressed. Over 70% reported that their mental health concerns were not discussed during treatment, and only 28% knew how to access survivorship services.

Many survivors continue to deal with persistent side effects such as chronic dry mouth, swallowing difficulties, altered taste, and dental issues. Approximately 15% screened positive for depression, underscoring the urgent need for comprehensive psychosocial support. The study, titled "Survivorship Therapy needs after Radiotherapy for Head and Neck Cancer: Surveying Opportunities for Growth (STRONG)," emphasizes the importance of adopting a holistic approach that encompasses physical health, mental well-being, cancer screening, and health promotion based on the Cancer Survivorship Framework.

Researchers suggest that survivorship programs should be personalized and patient-centered, with some survivors preferring fewer, longer visits that cover multiple aspects of care. As survivorship populations grow—projected to reach 26 million by 2040—the establishment of dedicated clinics that integrate multidisciplinary teams including oncologists, dietitians, mental health professionals, and social workers is essential. Northwestern is already working on developing such tailored survivorship clinics, starting with head-and-neck cancers, and testing interventions like cognitive behavioral therapy to help manage pain, anxiety, and depression.

This approach aims to fill the current gaps in survivorship care, ensuring patients receive the support needed for their long-term health and well-being. The findings underscore the necessity of shifting from solely focusing on cancer surveillance to addressing the broader health needs of survivors, ultimately improving their quality of life.

Source: https://medicalxpress.com/news/2025-04-surviving-cancer-survey-reveals-gaps.html